July 3rd
So I started my new meds on Monday night...didn't really notice any new side effects till today. My taste buds are jacked. I got a DP at lunch and I would've bet you $100 that someone had poured a salt shaker into it. So when I got home, I looked up my new med side effects...indeed it's true. Taste changes! !@#*(@#! Supposedly it's only supposed to last for the first few weeks or so. And no worries, since I'm on TWO medications at the same time I'm only TWICE as tired. So I'm basically flat-lined most each day. For someone who was super active to not very active I have now become...almost non existent active. This is the most annoying time in my life.
July 4th
Today I saved up energy by laying around and watching tv. I do so enjoy fireworks. But you have no idea what fireworks can be like on 2 seizure medications and a benedryl while being slightly dizzy standing atop a parking garage dodging lit cigarette butts and spitting. It was a truly joyous occasion. Love all of you who were present. However, my night was ruined when I had another dang focal motor seizure after a 3 day free streak. OH, and then I either broke or severely sprained my right pinky toe when I ran into Carl's bag on the floor by the bed last night after I turned the light off to get into bed. It's black and blue and swollen. haha!
July 5th
So spent today...exhausted. Really bummed because I've been looking forward to today because it's one of my friend's weddings. At the least I was planning on making the wedding, signing the book, and skipping the rest. No such luck. That's the most annoying part of this brain lesion...I never can really make plans. I make plans and hope to keep them, but a lot recently I've had to cancel because I just don't have the energy or ability to do it. If I don't cancel, then I have to crash on a couch or a bed for at least a little while to re-charge my batteries.
PS- You should go see WALL.E...it's pretty fantastic. And it's a fairly quiet movie so if you get overstimulated easily like me-it's perfect!
Hopefully you enjoyed some loud patriotic music with some cutoff American flag t-shirts and crying babies. God Bless America.
3 comments:
oh girl. This stinks. Sorry you've had some rough days. I can't imagine how frustrating this must be. Still praying for you and Carl. Wish I was a neurologist and could do something more. Praying things progressively get better and the days go fast until you meet with Dr. Awesome again.
Cara I'm with Kendra - I'm so sorry things have been so rough for you and I wish I could do something to help you. You're in my thoughts and prayers. Love you.
YAYYYY, i LOVED wall-e!! dusty has been promoting it to pretty much everyone he meets. its funny.
how's your toe?
Post a Comment